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Helly Welly

I'm officailly disabled!

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Well done on blue badge, I've just sent off a DLA form for my son who has Achondroplasia and is severely hypermobile ( as am I) in his hips, knees and ankles, he does all sorts of thing with his legs which just shouldnt be humanly possible :shock:.

 

My MIL works for the department which deals with this and she told me appeal more than once if they dont award it to you as they refuse most cases once and accept most cases after they have been more persistant.

 

I was lucky I had help to fill Daniels' form in, but I would have hated to have to do it on my own.

 

I hope your badge means you get to go out and about more.

 

Sarah.x

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Do bear in mind people that when you see people walking normally into a shop (I walk normally), that it might be that they have M.E or other related illneses where if they didn't park in the disabled bay that they wouldn't be able to do the shopping at all. It's a very difficult one. I wouldn't be able to cope without my blue badge. I can't walk around a supermarket, but I can get close enough to the school to be able to drop my children off etc.

I know that a lot of people do abuse the system though. :(

.

 

I do always think of those who are quite mobile at times but have mostly unseen problems - I would hate you to think I was being uncaring. It is the people who are obviously quite mobile or abusing the system which really get to me.

 

I'm still disappointed that sudden and acute disabilty is not recognised. The badges are dated and I can't see a problem with having one to cover severe or even moderate disability for a temporary period. One minute I was hiking up mountains at weekends, the next I slipped on ice in the school playground when taking my grandchildren to school and spent the next 4 months in a wheelchair, another year on crutches and then progressed to a stick - another 3 years before I could give up the stick. Even now there are things I can't do - I won't go to any concerts, esp. outdoor ones, as i can't walk the distance in crowds. I don't like to go shopping on my own as I'm scared of being jostled and falling. I can't kneel or crouch down and def. couldn't run even if my littlies lives depended on it. Like a lot of people I suppose I could do with a part-time temporary badge -and that is never going to happen :roll::lol:

 

I'm thankful to be as mobile as I am - but also frustrated at times.

 

Sorry Helen - seem to have been ranting in your thread........ :oops:

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Feel free Lesley, everyone's entitled to a rant.

 

I agree, temporary blue badges would be a great idea. OH is loving my blue badge as we didn't have to pay for our parking on Saturday. I'm loving it as i can, at last, park a lot nearer to my destination.

 

What makes me fume is the people who park in disabled spaces with no blue badge, especially in supermarket car parks. They know they won't get prosecuted as it's a private car park.

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We have no traffic warden in our town and very few disabled parking spaces which means a long walk from the car park to the shops if the spaces are taken and the number of times we've driven past and seen someone leap out of their car and jog up the street whilst leaving their car in a disabled spot :evil: . It makes me really annoyed because by the time we've walked from the car park up to the market and back, I can't walk much further and will ache for the rest of the day :roll: .

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What makes me fume is the people who park in disabled spaces with no blue badge, especially in supermarket car parks. They know they won't get prosecuted as it's a private car park.

 

No, but in my local Sainsburys they used to come out and plaster a huge notice on the windscreen ... it's designed NOT to peel off easily, and I've seen some cross people s"Ooops, word censored!"ing away at the windscreen!

 

Can I just add that - but for this post, and a previous one about trikes - I wouldn't have known any of you were disabled in any way. Just goes to show how democratic and inclusive internet forums (and especially this one :wink: ) are! And how great chicken-keeping is as a hobby for anyone!

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Helly Welly - re your DLA. It is worth keeping a diary of how you are each day for say a month. Included everything how you feel, are you in pain, how many times you bumped in to things or stubbed your toe, did you need to rest afterwards. How far you can walk, if at all without crutches. When you sleep, when you have help. Everything!

In cases where it is not easily clear cut it can really make a difference. I used to work as a welfare rights officer and helped a lady with ME and SAD get her DLA which she had been trying for for years. Having her diary and letters from friends saying what they saw really made the difference.

 

It is really important to give this info as it helps focus you on your difficulties so that you don't under play on your application (can be depressing having to see exactly how hard things are for yourself, but necessary). Also, it shows the case officer or tribunal exactlyhow your hypermobility affects you.

 

For example - I once met a women through work who was in a wheelchair, she couldn't walk. I had to ask her why she was in a wheelchair. She told me it was her arthritis. I was astounded as I had never come across someone so badly affected. When someone says they have arthritis, I and most people just think of someone with difficulty using their hands, maybe their arms. But not so disabled they can't stand!

 

Hope that helps, sorry if I have repeated any previous posts, I didn't read them all! :oops:

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Thansk for the advice guys, its all been very helpful. I wrote a letter outlining everything i have difficulty with, it sounded much more thorough than my original claim, a bit depressing too.

 

If i have to go to appeal, i'll get help with the CAB, for now i'm just being reconsidered so i'll see how it goes.

 

I think i will keep a diary for a while, it's just remembering to do it that's the problem, i'm the most forgetful person i know!

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