kazaddress Posted December 7, 2006 Share Posted December 7, 2006 Hi Kaz - thanks and i would be interested if you PM me. I have spoken to my team member at work and she believes once you are diagnosed with Coeliac Disease it can be managed on a gluten free diet and therefore is not life threatening it will be good to hear about how you managed to eat wheat again as she loves a nice bacon butty! I have PM'd you Just so you know.. Coeliacs Desease is an allergy to gluten.. which is different to a wheat intollerance. People with Coeliacs have a sever allergic reaction to the gluten protien. If you have a wheat intollerance, it means your body can not process the wheat germ, but it does not give you an allergic reaction, instead it gives you IBS. People with wheat intollerence can normally eat other gluten products (such as oats / rye) and people with Coeliacs can eat wheat products without the gluten protien some coeliacs can even have oats in small doses. Quote Link to comment Share on other sites More sharing options...
Mel (& Paul) Posted December 7, 2006 Share Posted December 7, 2006 But if you have been diagnosed Coeliac you should NOT eat Oats unless you have spoken to your doctor or dietician - there is no real way of seeing whether you can eat them other than eating them - and that causes all sorts of problems. One of the hardest thing about being Coeliac is avoiding gluten - its in so many things and whilst labelling is getting better it does make life difficult when food shopping. And whenever a manufacturer puts the words "new improved recipe" on the packet its For example Kellogs now put barley malt in all their cereal. Which means Coelliacs cant eat it. Walkers have changed the recipes to their crisps so whilst salt and vinegar are ok cheese and onion are now off the list I bet you can see me now. In the Supermarket (my favourite place............not) Coeliac "bible" in one hand (tells you what you have and what you cant) "Ethical Shopping" book in the other........... muttering about buying gluten free, buying ethically, English, buying local, buying seasonal............. Mind you, I get through the checkouts sooner with everyone drawing aside their skirts as mad woman from dorset goes stomping about Quote Link to comment Share on other sites More sharing options...
kazaddress Posted December 7, 2006 Author Share Posted December 7, 2006 I created a whole webpage still on coeliacs. as when I was (incorrectly) diagnosed I did heaps of research on it. It might help a few people out on here! http://www.simonhurley.co.uk/the-billingtons.co.uk/gluten.asp my friend is coeliacs and can tollerate oats (which has made her life a little easier)... always best to chat with your doctor before trying it... the coeliac society (who I still have links with), have started allowing things with low amounts of oats on their coeliacs list! Quote Link to comment Share on other sites More sharing options...
Mel (& Paul) Posted December 7, 2006 Share Posted December 7, 2006 But you will find they recommend talking to a doctor or dietician first http://www.coeliac.co.uk/glutenfree_living/eating_and_shopping/78.asp Quote Link to comment Share on other sites More sharing options...
kazaddress Posted December 7, 2006 Author Share Posted December 7, 2006 But you will find they recommend talking to a doctor or dietician first http://www.coeliac.co.uk/glutenfree_living/eating_and_shopping/78.asp that why i said its always best to chat with your doctor before trying it... Quote Link to comment Share on other sites More sharing options...
AnnieP Posted December 7, 2006 Share Posted December 7, 2006 Having met Mel (&Paul) and spoken to others about this disease, I would say its not "best" to chat with your Dr. I would say you'd be Bl**d* stupid not to, since the possibility of a severe reaction would just be too awful to take the risk. Edit: I have just received a pm from Kaz, concerned about this post. I would like to point out that I am simply stating the fact that if you have a diagnosed condition, it would be foolish to try something without the express advice of a doctor. Apologies to anyone who read this in any other way, includign Kaz Quote Link to comment Share on other sites More sharing options...
Popcorn Posted December 7, 2006 Share Posted December 7, 2006 Thank you for the Edit Annie. It did come across as rather sharp when Kaz had said in her post about checking with the Doc first. Glad that's been cleared up. Quote Link to comment Share on other sites More sharing options...
kazaddress Posted December 7, 2006 Author Share Posted December 7, 2006 Just thought I would clear up a few things that people seem to be confused by. I was diagnosed as being a coeliac at university, and I automatically swapped to a gluten free diet. This made me put on around 2-3 stone as a lot of specialised the gluten free foods are extreemly high in fat. I went on weight watchers and lost it all in around 30weeks. That was around 3 years ago. Since then I have spent a lot of effort helping people to eat healthy and cope with restricted diets. I dont need to follow a diet anymore, but I enjoy eating healthy (I am human so do have blips of course) It was only this year during an operation this summer that my consultant descovered I was incorrectly diagnosed, and it was an intollerence + another condition that was causing my extreem reaction, the other condition has now been resolved, which has just left me the wheat intollerence. The consultant recomended I limit my intake, as its obviously not ideal for my body, however I made an informed decision not to make a huge fuss about it, and just enjoy my life. I feel like I have been given a second chance, and Im taking it Hope that makes things clear. sorry if my ramblings look messy. I am not the best person with the written word! Quote Link to comment Share on other sites More sharing options...
Sheilaz Posted December 7, 2006 Share Posted December 7, 2006 Excellent summing up, Kaz! Hope all that ill health is behind you now, I'm sure it is after the ops. Here's to future health & happiness! Quote Link to comment Share on other sites More sharing options...
Nicola H Posted December 8, 2006 Share Posted December 8, 2006 Thanks for explaining that Kaz, like Sheila says lets hope your ill health is behind you and you stay healthy.......... Quote Link to comment Share on other sites More sharing options...
Lesley Posted December 9, 2006 Share Posted December 9, 2006 Carl's Mum was diagnosed coeliac yesterday - in her 70's? Is that normal? She was severely anaemic and having dizzy spells. At the moment I think she thinks it's the end of the world but I've got lots of info. ready for her and when I placed my order with Goodness Direct, I included some nice gluten free items for her as well as some staples like flour and crackers. She eats like a sparrow anyway but she will miss her toast in the mornings for a while. Quote Link to comment Share on other sites More sharing options...
kazaddress Posted December 9, 2006 Author Share Posted December 9, 2006 oh.. tell her about http://www.gfdiet.com/shopping.php Its a gluten free bakers.. and its AMAIZING.. I love their batternburg cake, pizza and garlic bread. you honestly can not taste the difference! oh.. and the crumpets... Mmmm Quote Link to comment Share on other sites More sharing options...
Lesley Posted December 9, 2006 Share Posted December 9, 2006 (edited) Thanks Kaz - she doesn't have a computer so I'll have to print details out for her. I found something called Mountain Bread today - have you tried any of those? They do single cereal varieties so you can choose which you have and make all sorts of things with them. I've ordered some to see what they are like. Check them out here Edited December 9, 2006 by Guest Quote Link to comment Share on other sites More sharing options...
kazaddress Posted December 9, 2006 Author Share Posted December 9, 2006 oh no.. never heard of that. A friend once brought me some gluten free bread.. the man had tried a couple of recipes.. and this was his second recipe.. The bread had... "Tommys number two" written accross it which is a rather unfortunate name for a brown loaf of bread have you tried Doves farm? they do a good range of flours and cereals? Quote Link to comment Share on other sites More sharing options...
Lesley Posted December 9, 2006 Share Posted December 9, 2006 Don't think I fancy the Tommy's.............. I use Doves Farm flour and I recently found a lovely stoneground Spelt flour (as wheat intolerant, I can manage Spelt) I've put a link to the Mountain Bread in my post above. Quote Link to comment Share on other sites More sharing options...
Mrs Frugal Posted December 9, 2006 Share Posted December 9, 2006 Juvela also do a really good range of things. Tom was on a gluten/dairy free diet a few years ago to see if it improved his Asperger Syndrome symptoms and the things Juvela have are really tasty. We used a lot of Dove's Farm things too plus T*sco have a range of gluten free foods now. Quote Link to comment Share on other sites More sharing options...
kazaddress Posted December 9, 2006 Author Share Posted December 9, 2006 oh.. i have heard of them cat... and yes T**co did do wonderfull gluten free pita breads.... although i was angrey at paying £2 for 4 pittas when simon could get nearly 50 value pittas for £2. not sure if they still do them, but if they do, they are handy to have around! Quote Link to comment Share on other sites More sharing options...
Lesley Posted December 9, 2006 Share Posted December 9, 2006 Thanks for that link to Juvela as well Kate - I knew thare was a site like that but couldn't remember the name. I also forgot that you can have some of the staple items on prescription. Quote Link to comment Share on other sites More sharing options...
Mrs Frugal Posted December 9, 2006 Share Posted December 9, 2006 Yes, we used to get bread and flour on prescription. Homemade gluten free bread wasn't one of my great successes, I'm afraid so we used to rely on ready made! Quote Link to comment Share on other sites More sharing options...
Karen & co. Posted December 9, 2006 Share Posted December 9, 2006 I was diagnosed coeliac 12 months ago and some of the ready prepared breads and cakes are really horrible but M&S do a very nice moist Christmas cake and mince pies, the cake tastes like fruit cake should do Most other things I either don't bother with or make myself a lot of the biscuits are so dry it's like eating dry pollyfilla Lesley a late diagnosis, is probably due to having mild symptoms for years, and finally someone has looked into it properly , her aneamia will improve now too as iron absorption is impeded in coeliacs, due to the gut lining being affected by the bodies reaction to gluten, which destroys the villi in the gut. Hope she feels better soon karen x Quote Link to comment Share on other sites More sharing options...
Lesley Posted December 9, 2006 Share Posted December 9, 2006 Thanks Karen. I wondered about the anaemia. I know from buying stuff for Lauren that it can be so dry and horrible. She's given up having a packed lunch because the breads are so often awful and she was bullied and teased for having anything different Quote Link to comment Share on other sites More sharing options...
Karen & co. Posted December 9, 2006 Share Posted December 9, 2006 I forgot to say that Tesco pittas are passable but taste better warm, but that's not much help to Lauren I'm afraid karen x Quote Link to comment Share on other sites More sharing options...
Mel (& Paul) Posted December 10, 2006 Share Posted December 10, 2006 The ranges in supermarkets are FAR better than about 15 years ago when Paul was diagnosed - back then the pasta was revolting - like the water you chucked out when you had seriously overcooked the rice The bread isnt much better (good as a leathal weapon if thrown at someone.......) but Paul has his toasted - which is better - it sticks together better too. The main thing is the labelling - far better - you often get brands saying contains gluten or gluten free. Once Carl's mum is on the diet she will be amazed at how mcuh better she feels. Pauls uncle has been ceoliac for about 20 years (in his 30s) and Paul was diagnosed in his early 30s. Back then they said it wasnt hereditry - but once Paul's mum was diagnosed (mid 50s) they did say there was a link. Carl's mum must make sure she eats properly and also gets lots of calcium - there is a link between coeliac and osteoporisis (spelling?) It does seem like the end of the world to start off with but things are so much better. When Paul was diagnosed he had been taken into hospital all blues and twos weighing 6 stone and I thought he had cancer or something horrible. Whislt it can be a real pain with catering actually the fact that he has to avoid gluten is not a big deal when you think what could have been. Quote Link to comment Share on other sites More sharing options...
Mel (& Paul) Posted December 10, 2006 Share Posted December 10, 2006 oh and I forgot to say that even going abroad is often not a problem - we have been in Nepal, Thailand, India, China, Finland, Africa and Egypt - and they all made gluten free bread for him (again you could have killed a mugger with it) but it shows that you dont have to cancel your holidays. Quote Link to comment Share on other sites More sharing options...
Lesley Posted December 10, 2006 Share Posted December 10, 2006 Thanks Mel, I'm sure she'll soon be coping well. She doesn't eat much anyway - MIL's are bad enough, without them being a tiny size 8 Quote Link to comment Share on other sites More sharing options...
