Warm boot recommendations please

[Karen & co.]

Sorry to sound so morose (think that's how it's spelt!) yesterday I popped along for what I thought was a routine hospital checkup, to be asked how I've been managing on my gluten free diet

 

What gluten free diet, I asked, oh but you have coeliac disease and must be on it HA

 

Shame noone told me 18 months ago I had the investigations and yesterday I get told I should have been treated for the past 18 months!!

 

At first I was "oh never mind" now I'm seething and worring about the impending flour mountain, as I must be one of the countries largest consumers of bread and cakes

 

Enough ranting, sorry folks, just wondered if anyone else has this and if any recipes or foods are better than others?

 

Sorry to be a misery guts, tons of worse things could happen

Karen x

Edited December 11, 2005 by Guest

[Sheilaz]

Karen, poor you! I know the diagnosis can take a while, but for the hospital to have that information and not to have told you is appalling. Rotten to be coeliac anyway, but at least, now you know, you'll be able to manage the condition and hopefully feel tons better on the diet.

A couple of people have discussed gluten free before, so I'm sure there'll be lots of support & advice on this topic over the next couple of days.

Good idea to learn some handy tried & tested tips about favourite alternative products, and also ones to avoid.

Every sympathy on the deserved rant, but hopefully a much brighter future healthwise for you. I do know a couple of coeliacs who hardly give it a 2nd thought, once past the initial finding out what works best stage.

Best wishes,

[Mel (& Paul)]

Hi Karen

 

Paul is Coelliac - he was diagnosed about 14 years ago after being very poorly indeed.

 

The good news is that there are so much good products out there in the Supermarkets and from specialist suppliers - also you can get things like bread, pasta, plain biscuits etc., on prescription (its worth getting a prepayment certificate otherwise it gets very expensive)

 

I think the hardest thing is giving up "real" bread, pizzas, pies etc., but, when you think of all the other things it could be it could be a lot worse. Paul has Glutafin fibre bread - its not bad (but you have to toast it otherwise it falls apart). and their white bread is pretty yukky - but its all personal taste. If you have a good doctor and a good pharmacy you should try different makes etc., before deciding on one type to stick with.

 

You can make a lovely lasagne now (the pasta used to be really yukky) and I get gluten free pizza bases and make my own - and even though I dont need to eat gluten free I eat the pizzas and they arent half bad (even though I say so myself).

 

Also, the Coeliac Society have local groups etc., and they are really good for support. They also provide a book which lists all the gluten free products from almost all the supermarkets / manufacturers. You can get updated addittions / deletions each month from the internet - one bad thing at the moment they have taken a lot of cornflakes (Kelloggs and supermarket brands) off as they can no longer guarantee them to be gluten free) They produce monthly newsletters:

http://www.coeliac.co.uk/exg/2005/december.shtml

 

Let us know how you get on - post here or send me a private message.

 

Take care

[Fleata]

i'm a celiac and get most of my produce from asda and the bread, cakes and cookies from www.gfdiet.com who bake freash and deliver.

 

also try www.goodnessdirect.com or .co.uk i cant remember

[Lesley]

What a shock Karen, after 18 months!!

 

As the others have said, there is a lot of foodstuff out there.

 

Goodness Direct is .co.uk

 

www.goodnessdirect.co.uk

[Mrs Frugal]

My nephew has Coeliacs Karen so you have our sympathies and hope that you manage to stay well. My son was on a gluten free diet for a couple of years to help with his Asperger Syndrome and we bought a lot of food from Juvela. They have a good range of foods and they send out a recipe leaflet every so often with details of new products.

[Karen & co.]

Thanks guys, sorry to moan last night

 

Had to go and see the dietician at the hosp this morning and she was really helpful, I had no idea that gluten is in so many foods including some toothpaste so now its trial and error to find things that I like as substitutes that will also fit in with a rather hectic family.

 

The next is the GP to find out why I wasn't given the results of the biopsy, and then a bone scan as osteoporosis is quite common in female ceoliacs, (any excuse for a trampoline to build up bone density )

 

Thankyou for taking the time to answer, and for the kind advice and links, will follow them up now.

 

Thanks Karen x

[Mel (& Paul)]

Good for you Karen - dont forget, we are all here if you need us for advice (or a moan!!!) Many of us have been through what you've been through - so chin up girl

[Karen & co.]

Friday I charged down the garden to clean the girls out before it went dark, and there on the roosting bars was a tiny egg, and in the nesting box another!!!!!! how good is that?

 

We left home before sunrise yesterday, and this morning there was another little one (from Saturday I think as it was stone cold already)

 

I'm sure it's Dobbie the smallest of the girls

 

Is'nt she clever

 

ps ate the first 2 scrambled, and the children thought they were the eggiest eggs they had ever tasted!!

 

Karen x

[Cate in NZ]

Congratulations on the eggs

I agree with the children- "home-grown" eggs are extremely eggy.

Sorry to hear about the coeliac diagnosis, and the fact that it took so long for them to inform you of it. Sounds like someone slipped up there

I know very little about coeliac, but it sounds as if there's a lot of people on the forum with information and good advice. Good luck with it

[Mel (& Paul)]

Great news about the eggs (and definintely gluten-free ) I have pm'd you about toasters and butter etc