Tiggy Posted October 5, 2010 Share Posted October 5, 2010 (edited) Tonight on Central News there is an interview with my cousins daughter, Rosie is now 18 & had a brain tumour since she was tiny, it has been removed 3 times but keeps growing back, her Drs think her last chance would be to use a newish cancer drug that is licensed for her particular tumour but cannot be funded by the NHS because its too expensive. They have set up the 'Rosie Farrell Hospital Fund' and need to raise £30,000! Edited October 12, 2010 by Guest Link to comment Share on other sites More sharing options...
Looney Posted October 5, 2010 Share Posted October 5, 2010 I hope you manage to raise the money needed for Rosie x Link to comment Share on other sites More sharing options...
Charlottechicken Posted October 5, 2010 Share Posted October 5, 2010 Oh, I missed the news tonight. Hope you get the funding and publicity you need. Link to comment Share on other sites More sharing options...
Tiggy Posted October 7, 2010 Author Share Posted October 7, 2010 Rosie & her family were Central news last night, I hope it encourages people to help, I really cannot understand why these drugs are so expensive Link to comment Share on other sites More sharing options...
Tiggy Posted October 8, 2010 Author Share Posted October 8, 2010 Ive put the link onto my signature in case anyone wants to take a look. Link to comment Share on other sites More sharing options...
LuckyChickenLover- Posted October 8, 2010 Share Posted October 8, 2010 Aww how terrible for you I hope everything turns out OK. I don't see how it need to be so expensive though! Also, I can't get your link to work Link to comment Share on other sites More sharing options...
Charlottechicken Posted October 8, 2010 Share Posted October 8, 2010 I saw her on the news, brave girl. She was also in the Metro today. Link to comment Share on other sites More sharing options...
Tiggy Posted October 9, 2010 Author Share Posted October 9, 2010 Ive fixed the link - thankyou for letting me know it wasn't working, Link to comment Share on other sites More sharing options...
Tiggy Posted October 12, 2010 Author Share Posted October 12, 2010 Good news after a lot of media pressure including a letter to Downing Street the NHS has agreed to fund some of Rosies treatment. We still need to raise more but not sure how much just yet. It does mean that she can start her drug treatment asap. The poor girl is in a lot of pain as the tumour is growing rapidly & pressing on her brain, the avastin should start to shrink it & keep her comfortable. Rosie's prognosis is not good but the drug will give her more time & make what is left of her life less painful. I wish she could have started her treatment earlier. There was a very non commital reply from Downing Street but the respose from the trust came very swiftly afterwards. But no matter how this reversal came about Im very happy that at last Rosie may get some relief. So to all of the unknown contributors to Rosies' cause out there my family send you our heart felt thanks X Anne for futher updates, please pm or click on link Link to comment Share on other sites More sharing options...
Chucky Mama Posted October 14, 2010 Share Posted October 14, 2010 Update from Tiggy very good news for Rosie, the Trust have now decided that Rosie can have her treatment for free on the NHS, we are not sure what changed their minds but this will give her a chance of surviving painfree for an indefiniate time. Rosie has asked me to pass on her thanks to anyone who supported her and the money donated is going to another girl who is also awaiting a decision and so far has been denied her treatment too I have removed the link from my signature because the account has been closed Link to comment Share on other sites More sharing options...
