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[Alis girls]

YS has been diagnosed with this. Hes having help and meds but wondered if any of you had children with it. It's an extreme type one that isn't readily recognised although our GP diagnosed it straight away. I don't want to go into his symptoms on here. Just wondered if any of you had any experience of it.

[gavclojak]

Thankfully I don't have any experience of this but just wanted to say well done you for not wanting to share your child's symptoms here. I think sometimes we're all guilty of giving away a little too much information but you have been very wise.

 

Must be very stressful for you all at the moment so hope your getting the support you and your family deserve x

[Cat tails]

No personal experience, but a friend of my had servere OCD when we were in secondary school. Luckily she has completely overcome her symptoms. Mostly by therapy if I remember correctly.

 

It will be a tough journey, but you'll get there!

[Ursula123]

My niece developed OCD in her early teens in the 1980's, She stepped on a needle on the beach, my sisters first words to her were 'that's it you have possibly got aids now' - my sister is not know for tact and diplomacy!

This has then triggered a hygiene OCD, for many years she struggled but now with the right medication it is more or less under control ( better than she was 5 years ago ) Due to her OCD she is unable to work.

[Alis girls]

Thanks all - lets face it we can all be tactless at times. All I will say is that we dont seem to have the rituals which made me think he was more bipolar. OH and I have felt out of out depth at times - and we've not told my dad or aunt. Dad woulnt understand and aunt would be supportive but shes recently bereaved so has her own demons to contend with. I posted on here as I thought someone might have had children with this.

[soapdragon]

The daughter of an acquaintance has OCD, mainly hygiene related, and it has recently got worse so acquaintance has started daughter (aged, I think, 14/15) on CBT - cognitive behavioraltherapy - organised via GP/CAHMS and says this seems to be helping. There are no easy answers to things like this (my ES has Asperger's so, whilst I cannot fully understand the situation that you are in I can certainly sympathise) but recognising it, getting a diagnosis and appropriate help are all steps in the right direction.

 

Good luck.

[Grandmashazzie]

Hi Alisgirls I have registered to do a free online course at Future learn and in the free courses I see one is about anxiety and CBT , you might find some useful info there.

[Alis girls]

I am at the end of my tether with my son. Hes become agressive and bad tempered. He saw his pyschiatrist this week. But starts off ok and then becomes complacent. Social media is banned as he was getting some negative comments so that is hacking him off and hes addicted to it like many of his age. I think he will end up in hospital if things dont improve.Sorry to sound off but no one I can talk to and OH and I worry about leaving him alone.. Thanks for listening. xx

[Cat tails]

Oh gosh, sorry to hear this. Must be very difficult.

You are definitely not the only parent struggling with this. Every year we have more kids in school that have some form of problem with using social media, computers or gaming.

What about family counceling or therapy? See how you can cope better as a family? Some kids at my school have benefited from this. Although what works, is really dependent on your son.

[Groovychook]

So sorry to hear you're having such a rotten time Ali

Wish I could offer some advice but just wanted to let you know that I'm thinking of you.

Must be so tough on you all.

Sending hugs xx

[Daphne]

I also can't help, I have no direct experience I'm afraid of what you are going through, I was just wondering if there are any online forums or support groups which might be able to help you as parents, just to read other people's stories, or even your GP? I also just wanted to say I'm thinking of you, it must be so tough.

[Alis girls]

Thanks after posting that I found OCD UK. Good advice on there and another forum for me to get addicted to. just needed to sound off. I also looked at the site Grandmashazzie recommended and will sign on to do a course when in a better place. I still have my sense of humour just. Thank you for your support. Xx

[Grandmashazzie]

Sometimes counselling can make things worse before they get better. I had young foster child who went for counselling and it really made him hard to manage. Whatever thoughts and issues he had were brought to the front of his mind and he found it hard to cope and became aggressive ( at least that is what I thought ) He had a lot of trauma to deal with and counselling took a while before we saw any benefit. Is there any family to help you get a break,evening off.Its hard when you are monitoring him and banning media. It is the bane of my life too. 15 yr old daughter is a different person I limit it to hour at night and of course she has it to and fro school. Sadly the bus has free wifi. It has caused more rows and arguments. Hoping things will improve for you all.

[Alis girls]

No sadly no family around - my dad thinks the internet is the root of all evil and anyway dad and aunt are 100 miles away. Today hes been much better - hes not got a good friend network - they all seem to be into things - if they arent growing dodgey plants (get my drift) they are accessing dodgey wesites on the internet. He has to use the internet for homework - facebook and youtube are banned. And we know hes not smoking anything illegal. Hes immature and we found out OCD can start after a strep infection. He tells us he started having weird thoughts in 2013 when indeed he was very poorly with a bug which required antibiotics. It affects the immune system. Bizarre. I can see traits of it in certain family members and so can OH. Yesterday was a bad day. today has been a little better. The meds do help but there has been bad press on it in the past, mainly because of a few people taking their own lives. I am trying to stay positive and have found a self help group in central London - I might go one evening. Thanks for your support - it has meant a lot as his symptons are not the norm. Ali xx

[chickencam]

We had some issues with ED who also had panic attacks, which are a big thing on both sides of the family. We managed to deal with it largely within the family, but one teacher at school was very supportive with regard to exams etc. We just tried to stretch her comfort zone very gradually to loosen the grip of the habitual behaviour. It is a long road and I would take any support that you can get. Being a teenager can be a miserable business, they need boundaries and load of love and support. We found car journeys one to one were a good time to talk without it feeling forced or confrontational. Fingers crossed that you find a solution.

[Alis girls]

Teenage years are awful. No way are they the best yrs of your life. I have to say school have been brilliant especially as we have kept them updated and also because he had detention for forgotten homework which he and OH forgot I was at work so have an excuse they kindly fitted his new detention around his treatment. We are giving lots of love and cuddles ( when allowed) and support. Panic attacks are nasty. You feel very vulnerable. Car journies areva good time to talk as you don't need eye contact.