Seagazer Posted June 30, 2011 Share Posted June 30, 2011 Oh goodness me, poor Lauren, I really feel for her. Here's hoping they go back in. She really does have to put up with so much. I'll stop moaning about my aches and pains now. Quote Link to comment Share on other sites More sharing options...
Chook n Boo Mum Posted June 30, 2011 Share Posted June 30, 2011 Lesley, biggest {{{{{{{hugs}}}}}}} I can muster for you and gentler ones for Lauren too, much love, Sha x Quote Link to comment Share on other sites More sharing options...
ClaireG Posted June 30, 2011 Share Posted June 30, 2011 Oh no poor poor Lauren sending ((hugs)) to you all and the brace and everyone needed will be there and that it will help. When i was in hospital and hooked up to lord knows how many machines and drips etc and had a catheter as i wasn't allowed out of bed, it was my TOTM to and i was so so so can only imagine how poor Lauren must feel at her age. Quote Link to comment Share on other sites More sharing options...
Ain't Nobody Here Posted June 30, 2011 Share Posted June 30, 2011 I am so, so sorry to hear about this latest news . Your post shows how down you feel and I can only imagine how poor Lauren feels . It brought tears to my eyes . Quote Link to comment Share on other sites More sharing options...
Goosey Lucy Posted June 30, 2011 Share Posted June 30, 2011 So sorry for you all, gentle hugs for Lauren, bigger ones for everyone else x I would be mortified if I was Lauren x Quote Link to comment Share on other sites More sharing options...
Sheilaz Posted June 30, 2011 Share Posted June 30, 2011 Goodness, I'm so sorry Lesley, and really upset that lovely Lauren should be suffering like this, it's horrendous. What a nightmare, I do hope better times come very soon. I do feel humble that it puts any problems I have in perspective, when life feels hard. You didn't rant, you are always eloquent. Sending all my love and support, and wishing for some improvements. xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx Quote Link to comment Share on other sites More sharing options...
Olly Posted June 30, 2011 Share Posted June 30, 2011 Oh poor Lauren - and poor you, and her mum and dad - it must be so hard to watch her go through this. I do hope better times are ahead. Quote Link to comment Share on other sites More sharing options...
Lesley Posted June 30, 2011 Author Share Posted June 30, 2011 Thank you all. My daughter was struggling to keep it altogether when she phoned me this morning, I waited until I was off the phone bfore I cracked and then that upset Carl as well I managed Aquafit by not changing into my cossie until I'd phoned and made sure i wasn't needed to take them to the hospital and phoning again as soon as i was out of the pool. I called in on my way home to help daughter to get Lauren showered and hair washed. No big hugs, just 'air' hugs and my daughter was all "don't be nice to me or I'll cry" so we glued our usual smiles back on. Lauren was lovely with me but grumpy with her Mum and was throwing clothes out of the wardrobe, using her hands like flippers as she's not able to move her arms much. Getting her dressed was a bit of a nightmare, she needs some stretchy clothes which have full openings....not something you'd usually find in a 13 year olds wardrobe Just as Lauren was ready for her shower, and before I arrived, my daughter's friend phoned to say Jake and his friends were on their way.........nooooooooo!!!!!! The friend had to dash down the road in slippers and half dressed to call them back It's not easy to close the bathroom door with three people in there. The hospital phoned while I was there and have made an appt. for tomorrow. She has to see the shoulder specialist even if the brace hasn't arrived. He has previously mentioned surgery but it's something to be avoided in EDSh and is usually a last resort because of the ligament and collagen defect. Her shoulders are multi-laterally unstable which is quite uncommon and that does not help. I had to dash back and collect Carl and both dogs as they were due their (belated) check ups and decided to take Lauren along as well - a break for my daughter and a change of scenery for Lauren. The Vet wouldn't give her any horse meds - I tried....... (and the afore-mentioned TOTM started while we were out ) At the moment she is using her right arm which has the long-standing shoulder dislocation to do things because that shoulder is still out anyway. Tomorrow, she will have an immobilising brace on that and isn't to use the other one She can't eat, drink, wash, dress or go to the toilet on her own and it will be worse tomorrow. If they suggest she stays in hospital she'll be off like a shot (as long as her hips, knees and ankles hold up ) and she'll refuse to go on the ward. We've always told Lauren that life isn't fair and she's used to that and also that there are worse things she could have.....but it doesn't always help. .... and guess what??? - she's still smiling! Quote Link to comment Share on other sites More sharing options...
Egluntyne Posted June 30, 2011 Share Posted June 30, 2011 Blimey. So sorry to hear it. Poor Lauren. So unfair. Quote Link to comment Share on other sites More sharing options...
ClaireG Posted June 30, 2011 Share Posted June 30, 2011 She is one heck of an amazing girl to still be smiling through all that Quote Link to comment Share on other sites More sharing options...
Plum Posted June 30, 2011 Share Posted June 30, 2011 Brave Lauren, real admiration for her and you all for your strength supporting her. xxxx Quote Link to comment Share on other sites More sharing options...
Chook n Boo Mum Posted June 30, 2011 Share Posted June 30, 2011 I know she's very young Lesley, but could she take the contraceptive pill to take periods either out of the equation or at least controllable or is that not advisable with her condition? At least it would be one less thing to worry about in these difficult times... Gentle giant {{{hugs}}} Sha x Quote Link to comment Share on other sites More sharing options...
Lesley Posted June 30, 2011 Author Share Posted June 30, 2011 I know she's very young Lesley, but could she take the contraceptive pill to take periods either out of the equation or at least controllable or is that not advisable with her condition? At least it would be one less thing to worry about in these difficult times... Gentle giant {{{hugs}}} Sha x Daughter and I were talking about that earlier as it is very clear now that Lauren's problems are hormone related, we were told that from puberty to late twenties would be the worst time. She went to bed early last night saying she didn't feel right, she knows something will happen but never knows which joint will be affected. Her second shoulder has been out twice since going out this afternoon, my daughter has managed to put it back in...... Reluctant to go down the route of contraceptive pill as she has not long started her periods and also my daughter had problems and couldn't take it.......... but it is another area to research Quote Link to comment Share on other sites More sharing options...
Chook n Boo Mum Posted June 30, 2011 Share Posted June 30, 2011 I can't take it either.........(thank heavens for the coil)....but there are more options these days than there used to be. Quote Link to comment Share on other sites More sharing options...
chickencam Posted June 30, 2011 Share Posted June 30, 2011 all I can say is thinking of you Quote Link to comment Share on other sites More sharing options...
TheGirlsMum Posted July 1, 2011 Share Posted July 1, 2011 So sorry, don't know what else to say. Quote Link to comment Share on other sites More sharing options...
Lesley Posted July 1, 2011 Author Share Posted July 1, 2011 Don't worry - nor do we anymore Lauren has had the brace fitted - needless to say, she hates it She has to wear it for three weeks initially. Her right shoulder is now not dislocating backwards (posterior dislocation) or forwards (anterior) but is dislocating inwards (inferior) The Consultant admitted that he has no idea what else to try so hopefully it will work. The left shoulder is still slipping in and out so has to be braced across her chest. She's decided that she is going to use her left arm very occasionally to enable her wash herself and sort out any intimate stuff but most of the time she will accept help. I popped over this morning to take some tops which she can step into and not have to put her arms into - Mum had dressed her, Dad was cleaning her teeth and I brushed her hair - team effort I'm going to adapt some of her favourite tops so that she can step into them. Fingers crossed for the next few weeks. Can't remember where I read it but it was to do with doctors being (or should be) taught that 'when you hear hooves, think Zebras not Horses' - in other words don't automatically look for the obvious.......unfortunately, it always seems to be horses....... EDSers are not even Zebras, they're Unicorns - complete oddities Quote Link to comment Share on other sites More sharing options...
Lesley Posted July 1, 2011 Author Share Posted July 1, 2011 Oh help! you really couldn't make this up - Lauren is supposed to be staying here overnight and while we (me and daughter) were on the phone trying to decide what to do for the best, daughter's mobile rang - son-in-law had taken Lauren out with him and he's just swerved to avoid an accident......both her shoulders are back out Don't know whether to laugh or cry Quote Link to comment Share on other sites More sharing options...
Olly Posted July 1, 2011 Share Posted July 1, 2011 Oh no. This is a bad time, isn't it - hope they can do something. Quote Link to comment Share on other sites More sharing options...
Chook n Boo Mum Posted July 1, 2011 Share Posted July 1, 2011 Lesley, laugh, don't cry, you may not stop More {{{hugs}}} xx Quote Link to comment Share on other sites More sharing options...
Sheilaz Posted July 1, 2011 Share Posted July 1, 2011 ......Don't know whether to laugh or cry You laugh, I'll cry for you.Poor girl, I do hope this particularly agonising stage is shortlived, you all deserve a smoother run of things. Wishing you all an event free weekend after this Quote Link to comment Share on other sites More sharing options...
Lesley Posted July 1, 2011 Author Share Posted July 1, 2011 We did laugh - hysterically Both shoulders were put back in by son-in-law and they went home - to find that the cat had given birth under Jake's bed! It had started off on daughters bed and left one kitten there and then gone to Jake's room and had three more! All kitties sorted out and now Lauren is here for the night....... I must be mad - fingers crossed that shoulders stay in .......or we'll be getting her Dad out of bed in the middle of the night Quote Link to comment Share on other sites More sharing options...
Goosey Lucy Posted July 1, 2011 Share Posted July 1, 2011 My word, you don't do things by halves, do you? Lovely news about the kittens, fingers crossed for a quieter weekend for you all x Quote Link to comment Share on other sites More sharing options...
bluekarin Posted July 2, 2011 Share Posted July 2, 2011 We did laugh - hysterically Both shoulders were put back in by son-in-law and they went home - to find that the cat had given birth under Jake's bed! It had started off on daughters bed and left one kitten there and then gone to Jake's room and had three more! All kitties sorted out and now Lauren is here for the night....... I must be mad - fingers crossed that shoulders stay in .......or we'll be getting her Dad out of bed in the middle of the night Oh god! At least you can't say your life is dull But maybe you'd like a bit of dull now. I really do feel for all of you in this situation. I know it's Lauren who has to go through this, but you do too. I know as I am there right now with my ED. I hope something is done for both our girls - and quickly (((hugs))) Quote Link to comment Share on other sites More sharing options...
ClaireG Posted July 2, 2011 Share Posted July 2, 2011 We did laugh - hysterically Both shoulders were put back in by son-in-law and they went home - to find that the cat had given birth under Jake's bed! It had started off on daughters bed and left one kitten there and then gone to Jake's room and had three more! All kitties sorted out and now Lauren is here for the night....... I must be mad - fingers crossed that shoulders stay in .......or we'll be getting her Dad out of bed in the middle of the night You couldn't make it up could you Quote Link to comment Share on other sites More sharing options...
