abwsco Posted September 22, 2010 Share Posted September 22, 2010 (edited) Any MacMillan nurses on here. If anyone is would they mind if I asked them some questions. Need some advice about my Dad and I'm at work at the moment so can't ring them up. Thanks Edited to change title Edited October 5, 2010 by Guest Quote Link to comment Share on other sites More sharing options...
Alis girls Posted September 22, 2010 Share Posted September 22, 2010 Sorry just comminal garden RGN! Quote Link to comment Share on other sites More sharing options...
Happy chickens! Posted September 22, 2010 Share Posted September 22, 2010 Sorry can't help - but if there are any here you are wonderful people, helped my uncle no end in his last few days. Hope your problem is sorted soon. x Quote Link to comment Share on other sites More sharing options...
abwsco Posted September 22, 2010 Author Share Posted September 22, 2010 Thanks. Rung the hospice and he's not registered with them so next step is that the GP is ringing me tomorrow. Knowing my stubborn dad he will have lied to the MacMillan nurse who he has spoken to and also the GP who he saw last week Quote Link to comment Share on other sites More sharing options...
Sheilaz Posted September 22, 2010 Share Posted September 22, 2010 Just wishing you all the best in this difficult situation, I hope the GP can help. I'm not a nurse, but my thoughts are with you. xx Quote Link to comment Share on other sites More sharing options...
abwsco Posted September 23, 2010 Author Share Posted September 23, 2010 Thank you It is much appreciated. Quote Link to comment Share on other sites More sharing options...
miffy Posted September 23, 2010 Share Posted September 23, 2010 Hope you found the answers you needed and the support for you all. Quote Link to comment Share on other sites More sharing options...
abwsco Posted September 25, 2010 Author Share Posted September 25, 2010 Thnak you mIffy. We've brought him from his home to ours. He refused on Thursday but I told him he had no choice and was coming on Friday. I don't think he's long left Quote Link to comment Share on other sites More sharing options...
miffy Posted September 25, 2010 Share Posted September 25, 2010 my thoughts and prayers are with you and all your family. Quote Link to comment Share on other sites More sharing options...
Alis girls Posted September 25, 2010 Share Posted September 25, 2010 Ditto - get all the help you can - you can register him with your GP if hes with you indefinately. Lots of love Ali Quote Link to comment Share on other sites More sharing options...
Snoxy Posted September 25, 2010 Share Posted September 25, 2010 Sending you all my love at this challenging time Lou X Quote Link to comment Share on other sites More sharing options...
sparkysmum Posted September 25, 2010 Share Posted September 25, 2010 Anne, have just read your post. So sorry to read of your Dad's ill health. I hope you find the inner strength to cope with all that is ahead of you. Alli xx Quote Link to comment Share on other sites More sharing options...
goodinparts Posted September 25, 2010 Share Posted September 25, 2010 Praying for you and for him. I'm sorry things are so tough Quote Link to comment Share on other sites More sharing options...
abwsco Posted September 25, 2010 Author Share Posted September 25, 2010 Thank you all. It is much appreciated. Quote Link to comment Share on other sites More sharing options...
Sheilaz Posted September 26, 2010 Share Posted September 26, 2010 Thinking of you daily Anne, and with you every step of the way. Are you trying to arrange a hospice place, or intending to have Father stay at yours? If the latter, you may be able to have some daily nursing visits, or even overnight attendance during his final days. As well as providing some of the essential care, it means any specific aspects of the illness & medication can easily be discussed. Also, Macmillan nurses are by all accounts a wonderful support (sadly no personal experience as we desperately needed help & there was no Christmas holiday cover ) so do pursue this if you can. I hope the GP is helpful & that Dad is as comfortable as possible and accepting of your actions. Try & take time to have any conversations right now that you will regret not having if you are overtaken by events. Wishing you & Dad all the strength that you need. xx Quote Link to comment Share on other sites More sharing options...
abwsco Posted September 26, 2010 Author Share Posted September 26, 2010 Thinking of you daily Anne, and with you every step of the way. Are you trying to arrange a hospice place, or intending to have Father stay at yours? If the latter, you may be able to have some daily nursing visits, or even overnight attendance during his final days. As well as providing some of the essential care, it means any specific aspects of the illness & medication can easily be discussed. Also, Macmillan nurses are by all accounts a wonderful support (sadly no personal experience as we desperately needed help & there was no Christmas holiday cover ) so do pursue this if you can. I hope the GP is helpful & that Dad is as comfortable as possible and accepting of your actions. Try & take time to have any conversations right now that you will regret not having if you are overtaken by events. Wishing you & Dad all the strength that you need. xx Thanks Sheila. A hospice nurse is coming to see us. I arranged it for Thursday but am going to see if I can get an earlier one. I think I am going to have to see if we are able to get a place at the hospice. (Not sure if I can get time off work and if I can how much as only small firm, he's in DD's room at the moment and they don't want their Grandad to die in it) My Mum was badly let down in her care by our GP 17 years ago and I don't want to see Dad suffer like she did. I don't think I could cope. Sorry to read that you were unable to get desperately needed help over a Christmas. Quote Link to comment Share on other sites More sharing options...
Sheilaz Posted September 27, 2010 Share Posted September 27, 2010 ...A hospice nurse is coming to see us. I arranged it for Thursday but am going to see if I can get an earlier one. I think I am going to have to see if we are able to get a place at the hospice.. That really does sound the best plan, I do hope it works out, it's such a good idea. Best wishes that the hospice are able to help ASAP. xx Quote Link to comment Share on other sites More sharing options...
abwsco Posted September 30, 2010 Author Share Posted September 30, 2010 Hospice nurse has been brilliant today. As yet Dad doesn't meet their admissions criteria. Just as well anyway as no room. Battle has now commenced with DN and SS. Apparently it's perfectly acceptable for him to be left alone in a bed for 6 hours whilst I go to work. Quote Link to comment Share on other sites More sharing options...
Lesley Posted September 30, 2010 Share Posted September 30, 2010 I hope you manage to get the support and help you need Anne - it isn't easy. Quote Link to comment Share on other sites More sharing options...
abwsco Posted September 30, 2010 Author Share Posted September 30, 2010 Thanks Lesley. I saw red, though didn't shout, when SS told me it wasn't a "bottomless pit" Must have been living in a bubble as I had no idea not having needed to contact them before. This is with me only having had contact with them twice as well. How on earth do people manage who have no-one to stand up for them Quote Link to comment Share on other sites More sharing options...
goodinparts Posted September 30, 2010 Share Posted September 30, 2010 The system is very badly broken - I see this so much with vulnerable elderly parishioners who have no voice apart from mine...Praying that you can get the support you need, so that these hard times may be as good as they can be. With too much experience of sitting with the dying (professional hazard of vicardom), a hospice is the place I'd choose to be. Take care of yourself too - you can't hold it together for everyone all the time. God bless Quote Link to comment Share on other sites More sharing options...
Lesley Posted September 30, 2010 Share Posted September 30, 2010 My sister and I had a really hard time last year, trying to get some decent care for my stepmother through her last few weeks. My Dad is very deaf and couldn't sort things out. We kept on asking and questioning and eventually found out that she qualified for Hospice Care at Home.....and the home could be a Nursing Home. Both local hospices had no room and we managed to get her moved to a local BUPA nursing home where she had just one week of dignified care in a room of her own and the nurses sat with her when we weren't able to be there. We didn't have to pay for it. Quote Link to comment Share on other sites More sharing options...
abwsco Posted October 1, 2010 Author Share Posted October 1, 2010 Thought I'd update that I've just had a phone call to say we have funding and there is a bed available for Dad in a local nursing/respite home that will give him the care he needs as he's refusing to eat/drink or take his medication. The hospice nurse is hoping that he can be moved today so he gets the care he needs as soon as possible. She's going to chase it if not. Quote Link to comment Share on other sites More sharing options...
chickencam Posted October 1, 2010 Share Posted October 1, 2010 That is a good positive step. I hope that it all works out for you today. Still thinking of you all, take care. Quote Link to comment Share on other sites More sharing options...
Jools Posted October 1, 2010 Share Posted October 1, 2010 Fingers crossed all goes to plan Anne, thinking of you at this horrible time Quote Link to comment Share on other sites More sharing options...
