Jump to content
Chickens Dogs Cats Rabbits Guinea Pigs Hamsters and Gerbils Birds
Joojoo

Sad news now FAB NEWS

By Joojoo, in The Nesting Box

Recommended Posts

Joojoo Chatty Chicken

Joojoo

Posted
  • Author
Posted

Thank you so much for your kind thoughts. It really means the world to me.

 

Dad had a more comfortable night last night and was quite chatty and looked so well tonight, whilst his prognosis stays the same. It's just so hard seeing him so upbeat and saying about coming home when we know that it really isn't likely to happen.

 

He is still on antibiotics to try and fight the infection but his stomach is swelling more each day. Although, he is virtually pain free at the moment which is really all any of us could ask or wish for.

 

Thanks again

Jue xx

Link to comment
Share on other sites
Olly SUPER CHICKEN!!!

Olly

Posted
Posted

So sorry to hear your news, and I've been through a similar experience. As others have said - be with him, hold his hand, and comfort him, hard as it is for you; and remember some good times. It is hard for you when he's talking about coming home, but probably better for him that way that he feels positive and is not fearful.

 

The next few days will be tough but you'll survive it, and if you need to visit at 3.15am then do - he's your dad. You've clearly been a good and loving daughter to him and it must be a comfort to him to have you and your brother around.

 

I wish you strength for the next few days, glad to hear that he is free from pain and feeling comfortable.

Link to comment
Share on other sites
Joojoo Chatty Chicken

Joojoo

Posted
  • Author
Posted

Thanks for thinking of me Jackie. Dad is pretty much the same - up and down. He had a really good day yesterday and it was difficult to believe he was so poorly, but today he has been very confused and quite agitated. He doesn't understand that he is in hospital so you explain to him, which he seems to grasp then a bit later he thinks he is in a shop and that the nurses are selling everything around him :sad:

 

I had a phone call this morning from the Occupational Therapist to say that they are considering sending him home or to a nursing home, although it won't be until they are happy that he is safe with his walking etc. The prognosis hasn't changed but I think he would be far happier at home. They are looking into care packages and I've spoken with a Macmillan nurse today, who although she mainly deals with cancer patients, is also overseeing Dads paliative care.

 

He got very angry with the Phsyiotherapist who was trying to get him to walk a short way down the ward and back. He was adamant that he didn't want to and that he doesn't want to go home, yet 5 minutes later he is talking about being discharged and back home again.

 

Apparently, they are going to take him home for an hour or so to assess him in the bungalow and see if there is anything he will need to make it safer for him, then they will take him back to the hospital, probably for a few more days, until he is ready to be discharged.

 

Jue xx

Link to comment
Share on other sites
Sheilaz Feathery Fanatic

Sheilaz

Posted
Posted

:) Sending you love & hugs, it must be so hard.

The drugs can cause a lot of confusion. My bro in law still swears his daughter went to buy icecream from the nurses who were selling it all night.

Wishing you all the best in having the right care for your Dad, and support for you to stay strong. xx

Link to comment
Share on other sites
kayandrob Frequent Layer

kayandrob

Posted
Posted

Big hugs hun, can't imagine how you are feeling, I had just read the thread and am sat here trying very hard not to cry, we went through something similar with my Grandma who I was very close to, Macmillian nurses are wonderful and I am sure your father will have the best care especially from you, he must be so proud of you, take care hun, big hugs and kisses.

 

K xxxx

Link to comment
Share on other sites
Joojoo Chatty Chicken

Joojoo

Posted
  • Author
Posted

Hi Everyone. Thanks for your lovely thoughts and messages. Sorry I've not been online for a few days but it's been pretty chaotic as I'm sure you can imagine.

 

Well things are hopefully changing for the better. It's a week today since we had the prognosis on Dad :cry: He was very very poorly for a few days but seems to have turned a corner since Thursday. He is bright, lucid and seemingly free of pain at the moment without having even paractetamol. His tummy is still quite swollen but we are hoping and praying that he is gradually coming through it.

 

The week hasn't been without it's traumas. The hospital have been an absolute disgrace and I am seriously considering lodging a complaint. Dad hasn't been receiving all of his "normal" medication for his heart problems and Parkinsons. The nursing staff have been leaving it on his locker and assuming he has been taking them - but he hadn't. He was so out of it for 3 or 4 days that he didn't even know where he was never mind remembering to take his tablets. I found the tablets when I had a tidy up on top of his locker :evil: On Wednesday, he was in so much pain with his stomach and internally where his catheter was attached that the consultant was paged. We were told that Dad had been one side of the bed and that the catheter had been the other during the night and that he had probably pulled himself. When I went to visit that night, the nurse arrived and had a look at the catheter and said "That's good Mr *******, it's flowing nicely now. You had a nasty blockage earlier didn't you?". :evil: He had been left in extreme pain all day from that.

 

We were told that when my brother and I came to the hospital on Thursday we could ask for the consultant to be paged and that he would come and give us an update. We waited for four hours for them to argue between themselves as to who was responsible for Dads treatment. The surgeon said it was the Gastro Consultant and the Gastro Consultant said it was the surgeon, which given that they couldn't operate I still don't understand his involvement at this stage. At one point the nursing staff said that he didn't have a consultant full stop. Anyway the Gastro Consultant eventually turned up and said that they were going to stop the antibiotics and watch him over the weekend to see whether or not the infection returned. It is very likely that the infection will return in the future and that it will be more severe and gradually increase in frequency but we will have to cross that bridge when we come to it.

 

He has had the most terrible diarrhoea, presumably from the four lots of very strong antibiotics that were being administered intraveneously, which has left him very upset due to the nature of it. He has had no warning at all and due to his poor mobility has had to be given incontinence wear. The nursing staff have left him to try to clean himself up and when I asked them to help him with this yesterday I was told "they are on the trolley. Help yourself" :evil:

 

There are so very many things that have been just wrong about his treatment that I can't even think of half of them at the moment, but I sincerely hope that no one else ever has to go through this. If this is the state of the NHS then it is a very sad state of affairs indeed. The nursing staff just seem to be glorified receptionists rather than the caring professionals that I thought they were :evil:

 

He has not needed any morphine since Thursday which is fantastic news and is only taking paracetamol periodically. I've just got back from seeing him this afternoon and he is continuing to improve so we are hopeful that one day he will be able to come home.

 

Please keep everything crossed and thanks again for your support (it's kept me going).

Jue xx

Link to comment
Share on other sites
jackiepoppies Chatty Chicken

jackiepoppies

Posted
Posted

Oh Joojoo :!:

 

There is not a lot I can say :!:

 

You might have read I was discharged from Coventry Hosp (bearing in mind it's a teaching Hosp.) just before Xmas with chronic brochitis.(and Norvirus)

 

Fortunately I got back to France where they treated my heart problem (and informed me I did not have bronchitis :!: ) and I'm pleased to say I am recovering well.

 

I will not criticise the doctors, nurses, ancillary staff etc. etc. who work for the NHS.

They (I am sure) do their best with the training , tools etc. they are given.

 

However on one occasion, when they were dispensing the evening medication, the staff nurse thought fit to comment on the length of my toenails (none of his********business)and gave me medication I had not been prescribed :!::roll::evil:

 

I can't praise the French system enough (and that's not just me) it is internationally recognised as one of the best in the world (but the French dont believe this and critiscize it :roll: )

 

HOWEVER......as long as your dad is doing well, is comfortable and has the prospect of looking forward to going home, something has gotta be going right :clap:

 

Thinking of you and sending BIG positive vibes :)

 

Jx

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
Go to topic listing
×
×
  • Create New...