jackiepoppies Posted July 27, 2009 Share Posted July 27, 2009 Oh Shirl, I'm sorry.......I'm tired and when I read your last post, I thought you said he'd had an EGG today and I thought, yeah that's great My DD can sleep with her eyes wide open and it's very disconcerting. As always, thoughts are with you. Jx Quote Link to comment Share on other sites More sharing options...
Shirl Posted July 27, 2009 Author Share Posted July 27, 2009 Now if he started laying eggs we would be worried! Quote Link to comment Share on other sites More sharing options...
Valkyrie Posted July 27, 2009 Share Posted July 27, 2009 You naughty girl! Quote Link to comment Share on other sites More sharing options...
Mrs Webmuppet Posted July 28, 2009 Share Posted July 28, 2009 I too sleep with my eyes open............my Mum had to warn babysiiters when I was a kid , frightened the life out of a few of them. It's taken Mr W years to come to terms with the whole eyes open but fast asleep thing ( keeps him on his toes , never knowing if i'm awake or asleep). I hope and pray that Tom continues to make tiny improvements. The body's way of healing is lots of sleep so hopefully that's a good sign. Quote Link to comment Share on other sites More sharing options...
Shirl Posted July 31, 2009 Author Share Posted July 31, 2009 Tom's EEG came back fine so he's not having fits. It is kind of good news, the downside being is that fits usually start because the brain is making new pathways and then hitting scar tissue. Can't help but think he isn't making new pathways. He spent 31/2 hours in a wheelchair on Wednesday and by that time he was exhausted and as soon as they put him back to bed he fell asleep with his eyes shut! They won't be getting him out of bed again soon as his breathing is bad again.I am feeling so down about it all now.I've spent so much time crying again as the reaslisation sinks in that Tom isn't getting better. The physio says all his movements are reflexes and that he is one of a very few people she has seen that are so badly damaged. She must be nearing retirement so she's seen a few people in Tom's position. Quote Link to comment Share on other sites More sharing options...
AnnieP Posted July 31, 2009 Share Posted July 31, 2009 Shirl, you have been through so much, no wonder you are feeling so low. I just don't know what to say to you, or how you are managing. bless you. xx Quote Link to comment Share on other sites More sharing options...
Joojoo Posted July 31, 2009 Share Posted July 31, 2009 Shirl, you have been through so much, no wonder you are feeling so low. I just don't know what to say to you, or how you are managing. bless you. xx I'm struggling to find the right words too but I am keeping everything crossed that you will all come through this absolutely horrendous time. I know you will be worrying yourself silly about Tom but try to remember to look after yourself as well. I hope that you have got plenty of emotional and mental support for yourself Very Best Wishes xx Quote Link to comment Share on other sites More sharing options...
Valkyrie Posted July 31, 2009 Share Posted July 31, 2009 He may not be making new pathways - perhaps he has discovered the scenic route - which always takes longer. Keep hoping for the best and as Joojoo says look after yourself too. Still crossing everything for you both. Quote Link to comment Share on other sites More sharing options...
Shirl Posted July 31, 2009 Author Share Posted July 31, 2009 The scenic route sounds nice I hope Tom's enjoying it. Quote Link to comment Share on other sites More sharing options...
Seagazer Posted July 31, 2009 Share Posted July 31, 2009 Shirl, thinking of you all and sending lots of positive thoughts. Quote Link to comment Share on other sites More sharing options...
Lesley Posted July 31, 2009 Share Posted July 31, 2009 Thinking of you Shirl Quote Link to comment Share on other sites More sharing options...
Chickvic Posted July 31, 2009 Share Posted July 31, 2009 Thinking of you and your family. Quote Link to comment Share on other sites More sharing options...
Helly Welly Posted July 31, 2009 Share Posted July 31, 2009 I don't know what to say Shirl, i think you're coping admirably. I'd be worried if you weren't having bad days and crying, what you and your family are going through is a terrible ordeal. As far as Tom's condition goes, whatever will come, will come. All you can do is hope for the best and support him where necessary. Make sure you get some help and support yourself. You will be going through a grieving process as you feel that the old Tom is gone. But he isn't gone, he's just different. We'll be here for you Shirl, whenever you need a shoulder. Quote Link to comment Share on other sites More sharing options...
Plum Posted July 31, 2009 Share Posted July 31, 2009 All the best Shirl, keep hoping for you x Quote Link to comment Share on other sites More sharing options...
Space Chick Posted July 31, 2009 Share Posted July 31, 2009 Hi Shirl, Just wanted to let you know that you, Tom and your Family are in my thoughts and prayers. Quote Link to comment Share on other sites More sharing options...
Cooks Posted July 31, 2009 Share Posted July 31, 2009 thinking of you all as always Shirl x Quote Link to comment Share on other sites More sharing options...
Shirl Posted July 31, 2009 Author Share Posted July 31, 2009 Thanks for your support. I really need it at the moment. Didn't see Tom for long today as the hospital have new anti swine flu procedures. Our visiting time has been curtailed and he's only allowed 1 visitor at a time. If it keeps swine flu out of the ward it will be worth it though. Quote Link to comment Share on other sites More sharing options...
Olly Posted July 31, 2009 Share Posted July 31, 2009 So sorry to read your posts above; thinking of you, I can't imagine how hard this is for you and your family, but I hope you can find a way to cope with it. Quote Link to comment Share on other sites More sharing options...
theherd123 Posted August 1, 2009 Share Posted August 1, 2009 Dig deep Shirl, dig deep! We are all thinking of you. Tom is making his own progress, it might not be obvious to everyone else but he is doing his own thing and taking his own time. Quote Link to comment Share on other sites More sharing options...
Ain't Nobody Here Posted August 1, 2009 Share Posted August 1, 2009 Just catching up after being away. I'm so sorry to hear about Tom's setbacks . It must be such a strain on you - I hope you're looking after yourself. Quote Link to comment Share on other sites More sharing options...
Chook n Boo Mum Posted August 2, 2009 Share Posted August 2, 2009 Just wanted to add some more supportive {{{hugs}}}, look after yourself Shirl, you've been so strong, don't neglect yourself. Sha x Quote Link to comment Share on other sites More sharing options...
Couperwife Posted August 2, 2009 Share Posted August 2, 2009 I keep reading this thread, but dont post on it. (((hugs))) from me and Kev. Quote Link to comment Share on other sites More sharing options...
abwsco Posted August 2, 2009 Share Posted August 2, 2009 Just wanted to add a load more {{{{{{{{{HUGS}}}}}}}}} from me as well Shirl. Quote Link to comment Share on other sites More sharing options...
Lesley Posted August 3, 2009 Share Posted August 3, 2009 And some more from me - you can never have too many hugs (even if Christian does say they are 'old lady hugs' ) Quote Link to comment Share on other sites More sharing options...
Chook n Boo Mum Posted August 3, 2009 Share Posted August 3, 2009 And some more from me - you can never have too many hugs (even if Christian does say they are 'old lady hugs' ) "old lady hugs" are the best, they are full of experience and love collected over more years than "young 'un" hugs ....not sure where I am...sort of "middling" hugs I s'pose ! Have some more "middling" hugs Shirl, as Lesley says, you can't have too many hugs Sha x Quote Link to comment Share on other sites More sharing options...
